I have the privilege of introducing you to a Delaware mama named Erin during the first-ever World Milksharing Week 2011. I met her through my role in HM4HB and have watched her grow as a mother from scared and unsure to confident as she was able to meet her sons needs. I met her, her son & daughter and her husband on the Fourth of July. I'll never forget that day. Gryphon was so tiny and frail at his 8 weeks old and 8 lbs. Just the other day, I was able to see him again and he truly is thriving on donor milk! He is chunking up as he should be and seems much happier and alert! It's truly a blessing to watch!
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This is the difference human donor milk can make! The photo
on the left is three week old Gryphon, this was the tiny boy that
found his way to my front yard with his family that July 4. The
photo on the right is Gryphon three weeks later and illustrates
the profound difference Human Milk 4 Human Babies has
made and continues to make in the lives of families! |
This is their story in Erin's words:
Writing this story is hard, very hard. Nothing about my son has turned out the way I imagined it to be, and it's been a devastating blow to me emotionally, physically and mentally. I'd been hoping for a VBAC but due to medical reasons had to consent to a repeat c-section to save my life and my son's.
I was very nervous about breastfeeding because it didn't go so well with my daughter, but from the very beginning my son was a nursing champ! He had such a strong suck and he was nursing all the time, I wish I'd seen the signs then, I wish I'd known more, I wish... I just wish.
We brought our little boy home, and he was always, always, always nursing, gaining weight and looking healthy. He did gain weight slowly, but so did my daughter, so I just thought it was genetics. I wish I'd known more. The first four weeks we were home my nipples were torn up, raw and bleeding, I didn't know what was wrong I couldn't figure it out, he seemd to have a really good latch, but it just hurt and he was so fussy. I was miserable, he was miserable, he was always nursing, always hungry, never sleeping, it always hurt.
Then one day it just stopped hurting, and my nipples got better, and I figured that maybe just had just needed to grow a little. We chugged along the next three weeks, going to the pediatrician frequently for feeding issues, he was diagnosed with silent reflux and put on meds, he started getting better, he was sleeping more, nursing less and seemed much happier. I was happier, I was more relaxed. Then he turned 6 weeks old, and something seemed off, the entire week he grew increasingly fussy, his feedings became shorter and he slept more, and became lethargic, by the end of the week I noticed a huge change in my baby. His eyes and his fontanels had sunken in, he had almost no color in him and if he was awake he was crying, there was no getting around it. I called the pediatrician and told them that I needed to come THAT day, no I couldn't wait until tomorrow and if they didn't take him I was taking him to the ER.
My heart fell out of my chest when they weighed him... 8 lbs 6 oz at 7 weeks old, he was born at 7 lbs 14 oz and just ten days before he weighed 9 lbs 6 oz. I couldn't figure it out, I couldn't understand what had happened, but I knew one thing, my baby had been starving despite all this frequent feeds. I turned to his doctor expecting her to help me figure out what it was that was going on, instead she pulled my son off of my breast and stuck a bottle of formula in his mouth. "He's just hungry, you need to feed him correctly." She labled us as "feeding issues and mismanagement of feeding" and told me to start giving him formula from a bottle, that she needed to know how much he was eating and when.
I left the office in a daze, beaten down, devastated that my child had been starving at my breast and so doubtful about myself as a woman and a mother. MY BODY IS BROKEN! I can't give birth to my babies and now I can't feed them! Breastfeeding him was the only thing I had left... When we got home, I started thawing some of the breastmilk that I'd pumped the previous month I was not going to give him formula, and my conviction only got stronger when my poor son proceeded to vomit every last bit of that formula out of his tummy. The only problem was, I didn't have enough milk to supplement him the way he needed to be supplemented, and from the week of his subpar nursing (when my milk became supply and demand instead of hormonally driven) my supply was almost nothing. I was astonished, anguished and ashamed that something like this had happened and for no apparent reason.
The next day I took me and my son to the lactation consultant at the hospital and she said right away, "Well he appears to have a bit of a tongue tie you should talk to his pediatrician about that" ANSWERS! I had an answer to what had happened, and when I got home I did a whole lot of research on it and discovered that it's fixable, this can be salvaged and we can happily breastfeed once again. The next day was another weight check for him and I brought up what the LC had said about his tongue tie, she looked at him and said "Oh, no he's not. He looks fine." I was completely blown away by this. I never expected her to disagree with me. I went home and did more research, meanwhile my pumping output was horrible and my supply in the freezer was almost gone and I had a baby who was now refusing to nurse and I decided that I was going to talk to his doctor about the tongue tie again because after more research it was so blatantly apparent to ME that he had a tongue tie, and I know my son, my son wouldn't just quit nursing because he doesn't want to, if he wasn't nursing it was beceause he couldn't, not because he didn't want to.
The next week he had a 2 mos check up and I brought up the tongue tie again, I said "Look, I know you said that he doesn't have it, but I think he does. Our symptoms match up, I mean EVERYTHING matches up, and from what I've been reading you can't base your complete diagnosis on JUST the appearance of the tongue, but you have to look at the mother baby pair, the mother's nipples (mine are flat) and their experiences." She said, "No, he doesn't have one, I think there might be something wrong in his esophagus because he's not really sucking well from the bottle either. I will give him a barium swallow test with speech so they can look at his mouth just to tell you that it's fine." I was okay with this, because surely they would see that his mouth was NOT fine, and then I got the referral... barium w/out speech.
I had had it with her. I was done, unfortunately at this point so was my milk, so I reached out to other Mamas on facebook, and immediately that night I had 40 oz of donated frozen breast milk and the link to
Human Milk 4 Human Babies. I wasted no time in posting, and was instantly rewareded with another 150 oz of donated breast milk. Through the networks I was able to find a short term "Milk Mama" for my little boy. On human milk my son thrived, and grew and became happy and healthy and gained weight, LOTS of it very fast. In three weeks he'd gone from 8 lbs 6 oz, to 11 lbs!! He has since continued to receive donor milk from Mamas all along the east coast, we've driven to get milk, we've had milk shipped to us and we've even tried wet nursing. Through HM4HB I gained a whole lot more than just breast milk, I got my son back, I gained a whole network of friends; supportive, loving and wonderful amazing women who are selfless in donating to make sure that MY son is healthy and that he is getting what I cannot provide for him. As of today, my son is 4 mos old and weighs about 14 lbs. During all this time I never stopped fighting to get him the help that he needed for his tongue and when he was 14 weeks old we were finally able to find a doctor who would clip it (after two peds, three states, four latcation consultants and a conversation with Dr. Kotlow in Albany NY). As of date he is still refusing the breast and my milk supply is close to nothing. I'm not ready to give up yet, like I said, at this point breastfeeding is the onlything I have left and I'm not ready to let it go. I have a couple of more ideas of helping him get back to breast, but it all starts with me getting my supply back up, until then though, I know I don't have to worry about where my son will get his food. HM4HB has been such a blessing in our lives and has drastically changed the quality of life for my son as well. I cannot even begin to find words to express the gratitude I feel towards the organization and especially the amazing Mamas who helped feed my son.